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Read conversations, start a discussion, and connect with others about narcolepsy.

Lumryz

What's people's experience who have changed from Xywav/Xyrem to Lumryz? I'm considering on changing to the new medicine, but I want to...

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How often would you have a "good" day before treatment?

I haven't got treatment yet, but it just occured to me that I haven't had a day where I woke up in...

Falling asleep all of a sudden

I notice when I fall asleep all of a sudden that be the deepest sleep ever and I feel relaxed when I...

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feel very exhausted

i found out i had nacolepsy last year.i lost my job because of it ,i am takeing meds for it now.but at...

sleep paralysis or cataplexy?

What is it called, when waking up and you can't move or communicate, but are aware of all going on around you...

Work

What do you all do for a living. I received disability but it is barely enough to pay the bills. Trying to...

Do you make your bed?

After you get up to start your day, do you make your bed or decide to skip it because you will be...

Do you go to a narcolepsy meet up?

Aside from big conferences like the National Narcolepsy Conference, there are lot's of meet up groups that exist! Let's make them known...

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Did you tell your employer?

Did you tell your employer you have narcolepsy? What was the conversation like?...

To Do Lists, Remembering, Note Taking OH My!! Any suggestions on methods, apps, or planners?!

I struggle so hard with this and need a paper and electronic method. I take wayyyy too many screenshots, bookmark too much...

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