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Read conversations, start a discussion, and connect with others about narcolepsy.

Does anyone else feel helpless?

For a quick backstory-I've been excessively tired for as long as I can remember. I have spent the last 6 years struggling...

How long did you take to find the right treatment?

I know there are many different drugs to deal with narcolepsy. Unfortunately, not all of them are legal in every country (some...

What is your most common nighttime hallucination?

Is it creepy figures? Shapes or sparkles on the walls? Piles of laundry turning into what you think is your dog? Share...

What are the worst side effects medication has given you?

I've had some really bad experiences with medication and I was wondering whether it's normal to have really bad side effects and...

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Which narcolepsy symptom impacts your daily activities the most?

In your experiences, which narcolepsy symptom(s) impacts your daily life activities the most? Has this changed over time? Also, do you have...

Can you tell when you are about to have a cataplexy attack?

Are there any early warning signs that let you know a cataplexy attack is coming? Share below!...

Advice

Hi all I've just got my results from my polysomnography and MSLT. Before this I reduced my dose and came off Pregabalin...

Narcolepsy medications and heart problems

I just turned 50 and have been talking Adderall for almost 30 years and while I am not thrilled to have to...

Sleep meds

I have narcolepsy and have been taking zopiclone 15mg. I no longer find it effective. What are others taking?...

Trusting God for healing

Im encouraging everyone thats dealing with Narcolepsy to trust in God for healing and do know that with strong faith healing is...

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