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Read conversations, start a discussion, and connect with others about narcolepsy.

How bad was your quality of life before diagnosis?

Could you get through a day without napping? Were you productive at all? Could you get up in the morning? For me...

It's hard saying no to things because of Narcolepsy...

This evening a friend asked me to go shopping with them tomorrow. Of course I wanted to hang out with them and...

Are people with narcolepsy more creative?

Has anyone ever felt that they are more creative because of narcolepsy? How do you express your creativity?...

switching providers and not having medication for over 30 days

I am switching providers for the treatment of my Narcolepsy and my old provider didn't give me any refills on meds so...

Doctors disagree on diagnosis, medication anxiety

Last year I had a sleep study and sleep latency test done to investigate my excessive daytime sleepiness. The sleep study was...

Extreme lethargy, lower concentration and awareness

Find right meds, maybe combination of two, desperate to improve my life, it's been many years and I haven't found the right...

Attending Events With Narcolepsy

Going to events can be a challenge without managing a chronic condition. Do you attend shows, conventions or other events with narcolepsy?...

Narcolepsy and terrible nightmares?

I have now got to the stage where I am actually frightened to fall asleep and I try my absolute best to...

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Feeling Like a Fraud

Anyone else feel this way sometimes? Like you don't have an actual medical problem, you're actually just lazy and undisciplined? I've been...

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Fill in the blank: My most frustrating narcolepsy symptom is _____.

From excessive daytime sleepiness to vivid dreams, what is your most frustrating symptom of narcolepsy? Share in the comments below!...

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